Engaging Consumers: Resources

• American Health Information Community (AHIC), Chronic Care Workgroup Visioning Statement, October 2006.
  http://www.hhs.gov/healthit/ahic/materials/meeting10/cc/Virtual_Care_Vision.doc
  
• AHIC Proposed Principles for Consumer Empowerment Breakthrough, 2006. http://www.hhs.gov/healthit/ahic/materials/meeting02/cemp/Cemp_[...].doc
  
• America’s Health Insurance Plans (AHIP), Issue Brief: Improving Health Care through Personal Health Records, December 2006.
  http://www.ahip.org/content/fileviewer.aspx?docid=18328&linkid=156982
  
• America’s Health Insurance Plans, PHR Data Elements, http://www.ahip.org/content/fileviewer.aspx?docid=18328&linkid=156990
  
• BlueCross BlueShield Association, Consumer Preferences and Usage of Healthcare Information, November 2006.
  http://www.bcbs.com/issues/transparency/research/Consumer-[...].pdf
  
• California HealthCare Foundation: It Takes a Region: A Framework to Improve Chronic Disease Care, Wagner, 2006.
  http://www.chcf.org/documents/chronicdisease/CreatingAFrame[...].pdf
  
• California HealthCare Foundation. “Online Patient-Provider Communication Tools: An Overview,” 2003.
  http://www.chcf.org/topics/chronicdisease/index.cfm?itemID=21600
  
• California HealthCare Foundation, National Consumer Health Privacy Survey 2005, Forrester Research.
  http://www.chcf.org/topics/view.cfm?itemID=115694
  
• Cynthia Baur, PhD, Office of Disease Prevention and Health Promotion, US Department of Health and Human Services. Presentation: “Health Literacy as a Factor in the Adoption and Use of Personal Health Records”, September 18, 2006.
  
• Health Information Technology-Consumer Principles, March 2006.
  http://justicematters.nationalpartnership.org/site/DocServer/HIT.pdf?docID=991
  
• Institute of Medicine, Crossing the Quality Chasm, (see especially Ten Rules for Care Delivery Redesign). 2001.
  www.iom.edu
  
• Lansky, David, PhD, Senior Director, Health Program at Markle Foundation Summary of email concerning barriers to engaging consumers in HIE. August 8, 2007.
  
• Markle Foundation, Connecting Americans to their Health Care Working Group on Policies for Electronic Information Sharing Between Doctors and Patients. July 2004.
  http://www.markle.org/downloadable_assets/consumer_principles_101105.pdf
  
• Markle Foundation, Connecting Americans to their Health Care: A Framework for Networked Personal Health Information. December 2006. http://www.connectingforhealth.org/commonframework/docs/P9_NetworkedPHRs.pdf
  
• Markle Foundation, Consumer Survey on Attitudes Toward PHRs and Electronic Health Info Exchange, October 2005.
  http://www.connectingforhealth.org/resources/101105_survey_summary.pdf
  
• Moyer CA, Stern DT, Dobias KS, Cox DT, Katz SJ. Bridging the electronic divide: patient and provider perspectives on e-mail communication in primary care. Am J Managed Care 2002; 8: 427–33.
  
• Tang P et al. Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption. J Am Med Inform Assoc. 2006 Mar-Apr; 13 (2):121-126.
  
• Value-Driven Healthcare: A Purchaser Guide. February 2007.
  http://www.bridgestoexcellence.org/pdf/Purchaser_Guide_REVISED_v1.2_2-2-07.pdf