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Intro | Engaging Consumers | Transforming Care | Population Health | Aligning Incentives | Privacy, Security and Confidentiality

Key Elements - Engaging Consumers

Strategies & Actions

Key Initiatives

Key Elements: Engaging Consumers

Engaging Consumers: Overview of Key Initiatives

Source/Reference	Initiative:	Summary:
America's Health Insurance Plans (AHIP), Blue Cross Blue Shield Association, National Health Council	Personal Health Record Model www.ahip.org www.bcbsa.org	A national effort to develop standards for health plan-based PHRs and policies for PHR data transfer.
	Goals:	Strategies / Principles / Tools:
	Create health plan-based PHR standards	Provide a PHR that will give consumers the ability to take information with them if they change health plans as well as facilitate information provision for both the patient and providers

Source/Reference	Initiative:	Summary:
American Academy of Family Physicians (AAFP), American Academy of Pediatrics (AAP), American College of Physicians (ACP), American Osteopathic Association (AOA)	Patient-Centered Medical Home (PC-MH)	A quality improvement approach to providing comprehensive care where the patient’s needs come first.
	Goals:	Strategies / Principles / Tools:
	To promote a partnership between the child, family, and physician care team.	Principles of a Patient-Centered Medical Home: Personal physician Physician-directed medical practice Whole person orientation Care is coordinated and/or integrated Quality and safety Enhanced access to care Payment is adjusted to reflect value of care coordination (especially as it relates to care outside of a face-to-face setting)

Source/Reference	Initiative:	Summary:
American Health Information Management Association (AHIMA)	myPHR	A PHR template for consumers to use in creating and maintaining their personal health records electronically
	Goals:	Strategies / Principles / Tools:
	Ensuring that all medical information collected about you is complete, accurate, and protected, yet, at the same time, readily available for your healthcare providers when it’s needed.

Source/Reference	Initiative:	Summary:
American Health Information Community (AHIC)	Consumer Empowerment workgroup
	Goals:	Strategies / Principles / Tools:
	Develop a plan to realize a specific charge (deployment of pre-populated electronic registrations and medication histories) within one year that is visible to the American public and that works towards a broader charge (widespread adoption of personal health records) over time.	Broad Charge: Make recommendations to the AHIC to gain wide spread adoption of a personal health record that is easy-to-use, portable, longitudinal, affordable, and consumer-centered. Specific Charge: Make recommendations to the Community so that within one year, a pre-populated, consumer-directed and secure electronic registration summary is available to targeted populations. Make additional recommendations to the Community so that within one year, a widely available pre-populated medication history linked to the registration summary is deployed.

Source/Reference	Initiative:	Summary:
Centers for Medicare & Medicaid Services (CMS)	MyMedicare.gov	An 18-month pilot project to encourage Medicare beneficiaries to optimize their health using Internet-based tools. Participants include: HIP USA, Humana, Kaiser Permanente, and the University of Pittsburgh Medical Center
	Goals:	Strategies / Principles / Tools:
	To assess the use of PHRs Identify the features beneficiaries prefer Determine how best to conduct outreach and education Determine how best to encourage adoption and ongoing use of PHRs	MyMedicare.gov features include: View claim status (excluding Part D claims) Order a duplicate Medicare Summary Notice (MSN) or replacement Medicare card View eligibility, entitlement and preventive services information View enrollment information including prescription drug plans View or modify drug list and pharmacy information View address of record with Medicare and Part B deductible status Access online forms, publications and messages sent to beneficiary by CMS

Source/Reference	Initiative:	Summary:
Center for Connected Health	www.connected-health.org	A division of Partners HealthCare leading efforts in the use of technology to deliver quality patient care outside of the medical setting.
	Goals:	Strategies / Principles / Tools:
	To increase access and improve quality medical services and patient care by applying consumer technologies and online resources in innovative ways.	Remote Care: Patient-provider communications which happen on a more continuous basis, instead of only during scheduled visits, improves both the efficacy of care and offers a more patient-centered approach to the exchange. Whether it’s an online office visit or a messaging platform delivered via the cell-phone, we are establishing new models of engagement. Self-Care: Access to physiologic data will provide patients with feedback that promote improved decision-making, healthier behavior, and motivation to change. In this area, we are interested in topics such as care plan adherence, behavioral modification, and health engagement.

Source/Reference	Initiative:	Summary:
Center for Health Transformation	Health Information Technology Project	A membership-based collaboration created to drive adoption of health information technology to help create a Nationwide Health Information Network.
	Goals:	Strategies / Principles / Tools:
	To engage consumers on using personal health records in their health and healthcare management	Among other principles for HIT adoption, the following are specific to engaging consumers: Pass a federal law giving individuals ownership of their health records. Pass a law to preserve the confidentiality and security of electronic health records by making the unauthorized access of medical records a felony with sever penalties, including slander if published or posted online. Engage employers to offer personal health records to their employees by combining consumer portals with incentive programs for wellness and health.

Source/Reference	Initiative:	Summary:
Connecting for Health – Markle Foundation	Personal Health Technology Initiative	A consumer advocacy effort that promotes patient use of and empowerment through personal health records.
	Goals:	Strategies / Principles / Tools:
	Envisions a future electronic health information environment that: Allows patients, consumers, and caregivers to take a very active role in healthcare Supports effective and efficient communication between physicians and other health providers and the individuals and their families in their care Improves the quality of health care Reduces medical errors and enhances safety Emphasizes continuity and convenience of care Safeguards patient privacy Earns and keeps the public’s trust	Consumer Principles: Individuals should be able to access their health and medical data conveniently and affordably. Individuals should be able to decide (i.e., authorize) when their health data are shared, and with whom. Individuals should be able to refuse to make their health data available for sharing (i.e., opt-out). Individuals should be able to designate someone else, such as a loved one, to have access to and exercise control over how their records are shared. Individuals should receive easily understood information about all the ways that their health data may be used or shared. Individuals should be able to review which entities have had access to their personal health data. Electronic health data exchanges must protect the integrity, security, privacy, and confidentiality of an individual’s information Independent bodies, accountable to the public, should oversee the electronic health data exchanges. No single stakeholder group should dominate these oversight bodies. Consumer representatives selected by their peers should participate as full voting members.

Source/Reference	Initiative:	Summary:
National Health Council and AHIP	HealthTracks	A pilot program to increase consumer awareness about electronic personal health records and information tools.
	Goals:	Strategies / Principles / Tools:
	Information sharing and promotion of PHRs to those with chronic conditions, health information seekers, and patient advocates interested in improving consumers’ quality of care.

Source/Reference	Initiative:	Summary:
The Leapfrog Group	Leapfrog Hospital Quality and Safety Survey For Consumers For Hospitals	A tool that assesses hospital performance based on quality and safety practices that are proven to reduce preventable medical mistakes and are endorsed by the NQF.
	Goals:	Strategies / Principles / Tools:
	To help consumers make informed decisions about where to receive hospital care based on quality and patient safety results.	The Leapfrog Group principles: Reduce preventable medical mistakes and improve the quality and affordability of health care. Encourage health providers to publicly report their quality and outcomes so that consumers and purchasing organizations can make informed health care choices. Reward doctors and hospitals for improving the quality, safety and affordability of health care. Help consumers reap the benefits of making smart health care decisions.